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Q & A FORUM INFO

Registered users can submit a thread (each thread is a single question) on any autoimmune, thyroid or health-related topic – including questions about your pet! Questions will be answered by Elaine Moore.  Because this is not a community forum, members will not be able to reply to threads once questions are asked and answered. Questions may be edited for brevity and grammar. If you need technical help, contact Admin.

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 3/8/2010 5:59 PM
 

Hello Elaine,

I wanted to thank you for the good advice you give on this page. I wrote before that my hyperthyroidism had turned slightly hypo with FT4 only .58 and tsh rising to 3.3. My dr. listened to me last November and reduced my Methimazole dose from 5 mg/day to 2.5 mg/day. New labs show my TSH is 2.5 and FT4 is 1.1 ng/dl, finally normal after 18 months! i feel good. i just wanted to tell others to keep trying to balance everything out and they'll get there.

I did wonder one thing. do you recommend staying on meds indefinitely if you are stable or going off methimazole after 2 years to see if the body will maintain the levels on its own? 

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 3/9/2010 10:35 PM
 

Hi Christine,

Going by a certain timeframe to stop meds isn't a good idea since we're all different. It's important to determine that you're in remission before stopping meds. There are two ways to do this:

The easiest is to look at your TSH level after being on a low dose of meds (1.25 mg daily) for more than 6 weeks. If you're secreting TSH normally you're likely in remission. You can then wean further by taking the 1.25 mg dose every other day and having labs after 6 weeks on this dose before stopping meds completely.

Alternately, you can have a TSI level. If it's lower than around 70% activity you should be able to stop meds. Symptoms usually occur when TSI is at 125% activity.  Looking at TSH works because TSI antibodies falsely decrease the TSH level. If on a very tiny dose you're secreting TSH normally, this shows that your TSI levels are low. Best, Elaine

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