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 2/7/2010 11:38 AM
 
deniserahjes
No Ranking

Joined: 12/8/2008
Posts: 6

Elaine:

I no longer have a thyroid  as of 1/09 and I tried taking Armour, Synthroid, compounded Synthroid and T3, you name it, but they all caused bad side effects to my bladder - I've had interstitial cystitis for 6 years.  Not knowing what to do I worked up slowly to 62 mcg of Synthroid daily and my TSH was around 22 - still high but getting better.  I found a compounded bioidentical thyroid replacement that I was better able to tolerate and around Nov. 15, 2009 I switched from 62 mcg of Synthroid daily to a combination bioidentical of 19 mcg T4/6 mcg T3 twice daily, a lower dose than the Synthroid but I had to work up slowly.  I was fine until about 6 weeks into the change of meds I started having hyperthyroid symptoms again but blood levels showed a high TSH of 74.  I switched to an all T4 bioidentical compound thinking the T3 was causing the problems and started taking 25 mcg twice daily.  But the longer I take the compounded med the more hyper I feel but my doctor says it's impossible that it's the compounded medication because of my high TSH of 74.  My doctor doesn't know anything about compounded meds and it has been me all along requesting the bioidentical replacement and he agreed because of my situation.  Is it possible to have high hypo labs and be seriously hypothyroid but have hyper symptoms.  It has to be the medicine because I feel just like I felt when I was diagnosed with Graves but my endo says no way is it the meds.  What are you thoughts and what should I do?  There is no way I can go back to Synthroid or Armour and there is no doctor that knows what to do.  Do you have any advice? 

Denise

 

 
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 2/7/2010 7:32 PM
 
Elaine
1st Level Poster

Joined: 8/1/2008
Posts: 1683

Hi Denise,

Are you having FT4 and FT3 levels as you try these meds? Although a high TSH usually means hypothryoidism, rarely patients can develop TSH (not TSH receptor) antibodies and this can cause a falsely elevated TSH. Occasionally, patients can also develop heterophile antibodies that affect TSH levels as well.

It's important that your base your meds on your FT4 and FT3 levels and not on your TSH level. If FT4 and FT3 levels are low your doctor can order tests for TSH antibodies and heterophile antibodies to see what's go on.

If TSH is high and your thyroid hormone levels are indeed low, then you may have to keep experimenting, first working on getting adequate T4 and slowly adding T3 if it's needed. Using T4 alone you'd have more options with all the different generic types of levothyroxine and compounded products. Let me know how your levels look. Best, Elaine
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