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Registered users can submit a thread (each thread is a single question) on any autoimmune, thyroid or health-related topic – including questions about your pet! Questions will be answered by Elaine Moore.  Because this is not a community forum, members will not be able to reply to threads once questions are asked and answered. Questions may be edited for brevity and grammar. If you need technical help, contact Admin.

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 7/24/2010 1:02 PM
 
DebbieB
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Joined: 7/16/2010
Posts: 8

Hi Elaine,

I know your book on TED talks about people who have used PTU to treat TED. My doctor generally uses PTU to treat TED after RAI. Because of my recent flare up, I tried PTU and had disasterous results. My T3 dropped to 2.3. I felt horrible and my eyes got worse. Six weeks after stopping the PTU, my eyes are still bone dry, blurred, burning, itching, etc. I am taking flax seed but I am post menopausal and live in the dry Arizona desert. Not a good combination. My eye doctor finally gave me Restasis and put plugs in my tear ducts, but they are not healed yet.

I convinced my doctor (endo) to let me try MMI since it does not affect conversion to T3. She is having me start at 2.5mg a day for one week, adding 2.5mg weekly until I reach 10mg. Why do I need to ease into taking MMI so slowly? How long can I expect it to take before I see improvement in my eyes? What is the long term plan as far as staying on MMI? My doctor says most of her patients want to stay on PTU forever. That seems like a long time to me.

Debbie
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 7/26/2010 1:06 AM
 
Elaine
1st Level Poster

Joined: 8/1/2008
Posts: 1801

Hi Debbie,

After RAI, people with TED occasionally use ATDs with replacement hormone as block and replace therapy. The ATD dose is low and enough hormone is given to keep FT4 and FT3 at the high end of the range and TSH is typically very low. This protocol helps with TED and the ATD dose is gradually reduced and people eventually are on thyroid replacement hormone alone (by 6-9 months into treatment). There's no reason to continue on ATDs after this time frame as your goal is to slow the gland's activity down, and this can be accomlished with replacement hormone alone. best, elaine
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