As you know my daughter was very near remission for a few years and thyroid labs have been stable for a few years. Had labs yesterday after about 4 months when they were still stable. She has been taking 1.25mg methimazole ever other day for a few years and everything was good. SO the labs from last night her TSH is now 0.005. basically what it was at diagnosis years ago. Waiting on her FT4 and T3 and TSI still. When diagnosed her TSH was not exisitent and her FT4 and T3 total were in range so considered subclinical hyper and no meds at that time. Then she almost had a storm and had to go to hospital where her T3 shot up and thats when she was put on methimazole first time. So if FT4 and T3 are in range would we have to wait to go on higher dose of meds or would they start that now? I fear just waiting if same situation for a storm to happen. I hate to say it but i can guarantee she wasnt taking these meds more than once or twice a week as she has horrible memory issues and forgetfulness. This 4th qtr of school was a struggle and barely passed 11th grade. I forgot to add shes also on iron supplements as her iron panel levels are all low as well. She was on them in the past and doc took off as her iron panel levels were good for months but been off a few months and iron levels tanking again. She has always had heavy menstrual flows and thats what they feel is casing the low iron issues. I am just frustrated and very worried for her as i cant ever get her to take pills everyday and shes not little anymore so cant hold her and shove them down her throat.

Hi,
Is your daughter having seasonal allergy issues? that will cause a rise in TSH receptor antibodies, which causes a drop in TSH. Don't worry until you seethe FT4 and FT3 results. My thyroid levels are low but TSH stays low because of my allergies and antibodies.
If she starts back on meds see if she can take the same low dose everyday. Best, elaine