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THE Q & A
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Welcome to The Q&A with Elaine Moore. Registered members are invited to ask any question of Elaine Moore on autoimmune diseases, Graves' disease, other thyroid diseases and subconditions, laboratory work, traditional and complementary medicine, triggers and environmental influences, thyroid and immune disorders in pets and animals, and other relevant areas of inquiry.
Each thread represents one question with one answer and will only appear at the time it is answered. Once answered, further replies cannot be made to the same thread since each thread represents only one question. A new thread will need to be started for additional questions.
Questions are answered solely by Elaine Moore, a medical writer and clinical laboratory scientist, MT, CLS, with more than 30 years of experience in immunology. Moore has also authored and edited over a dozen books in the area of health sciences and is an editor for McFarland Publisher's Health Topics Series.
Copying of any posts is prohibited without permissions.
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Notice: No notices today.
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| Jane |
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Joined: 6/14/2011
Posts: 12
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Sorry Elaine... One last question...
When you read up on TED it often says it lasts anything from 18 months to 5 yrs. However, the only people I have ever met/ come across have had it active for at least 5, 8 yrs, possibly ten. I am beginning to think that it's a myth that you ever get over congestive TED!! All I want is to get to the stage where it's stable and I can repair all this horrible damage with cosmetic surgery. However, I am beginning to wonder whether this stage really does exist!
I wonder in your experience whether you have come across many people who have managed to get to the stable stage and how long it took them? When you see pics on the internet of people having cosmetic surgery, I wonder how many years has it taken them to get there?
By the way, as for my case, I've never smoked, had RAI so I don't know why it can be so awful. The girl who had it for 10 yrs and had massive massive protrusion and was still on steroids today also had never smoked or had RAI! It seems so unfair.
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| Elaine |
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Joined: 8/1/2008
Posts: 3396
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Hi Jane,
According to the doctor I worked with on my TED book, stress plays a big role as it stimulates the immune system. He could always tell when his patients were having personal problems because their eye symptoms flared. I know you're working on avoiding stress, and started a walking program but you might also want to try yoga (exercise videos) or meditation.
Most people's eye symptoms resolve nicely within 18 months, but by most people, I'm referring to people who used anti-thyroid drugs such as methimazole to help them move into remission. Even people who had RAI respond well to a block and replace approach or LDN. In my case, my TED symptoms were sporadic and Beconase (similar to Nasonex) helped. What really helped was adding T3 to my regimen and keeping my levels on the high side.
I'm very prone to periorbital edema when my thryoid hormone levels even fall slightly. Hopefully some of the suggestions will help. best, elaine
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TO USERS: Q&A posts are visible to all readers. Users can delete their own threads at any time. Users must provide information which is true and correct to the best of their knowledge as well as provide sources or references to any health / medical information if not taken from personal experience. All users including the moderator must behave at all times with respect and honesty. Advertising and self-promotion is not allowed. The moderator or site administrator has the right to ban users with or without warning for not following the basic rules of this site. All posts by default are not to be considered that of medical professionals unless otherwise indicated. As sole moderator, Moore has no conflicts of interest in the sponsorship of this forum.
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