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New Post 8/12/2009 3:27 PM
  Suzy
2 posts
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Lab Tests Post RAI for Graves Disease 

Unfortunately I was also scared into have RAI in 1998. I've had less complications that a lot of others I've researched, but I'm still not satisfied I'm on the best meds. My Endo started me on Synthroid, hated it, my hair fell out and I wasn't "me". He said my labs were fine, that I might be depressed. Fired him and went to a Naturopath who out me on Naturethroid and a low dose of levothroid, did pretty well on that for years.  Last year I changed Docs after developing high blood pressure. I had also been dealing with severe hot flash for about 5 years (I'm 53). I tried all the natural remedies for that I could find, nothing worked.  He didn't like the Naturethroid put me on Levothyroxin alone and adjusted the dose to 150mcg. 1mg Estradol for the hot flashes (they are gone now) and  20 mg of Lisinopril for the BP.  All went well for about 4-5 months.  Then my hair started falling out again and went STRAIGHT and soft.  He said that was probably natural, that a lot of people loose some hair in the Spring. I've had naturally curley (kinky) thick, coarse hair all of my life. I've read that some post RAI Graves patients don't convert T4 to T3 properly and that TSH can be mis-read. I'm having trouble getting my Dr to do the Free T3 test. They always do other T3 tests.  My last labs are as follows. T4, Free=1.4   TSH 3rd generation=0.19   T3 uptake=32.  I'm going to see my Dr in 2 weeks, will have blood drawn next week, so he'll have the results for my appointment. I'm going to try to insist that they do the Free T3 triiodothyronine test.  Any suggestions?  Thank you, Suzy

 
New Post 8/12/2009 6:33 PM
  Elaine
879 posts
3rd Level Poster


Re: Lab Tests Post RAI for Graves Disease 

Hi Suzy,

The T3 uptake test is an obsolete test once used to calculate about how much FT4 a person had. The uptake doesn't measure T3 at all--rather, T3 is used as a reagent and the test measures binding proteins, the proteins that transport thyroid hormone. Before we had tests for FT4 and FT3 we used the uptake to calculate about how much FT4 one had based on their T4 level.

It really would be helpful if you had an FT3 since total T3 is influenced by estrogen. The lab won't do the test without an order although LabCorps (except for New York, NJ, and RI) will let you order (and self-pay) lab tests. It'd be easier if you could call your doctor and ask the nurse to add an FT3 to your order. She could fax it in.

After the first few years, most people who've had RAI do feel better on both T4 and T3 replacement hormone. Best, Elaine

 
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